Consumer-led research insights in value-based cancer care – Process, people and partnership

Published Rebecca Vicino on Thu, 07/25/2024 - 14:14

Monday Lunch Live

Consumer-led research insights in value-based cancer care – Process, people and partnership

22 July 2024

The VCCC Alliance Value-Based Health Care Program facilitated a consumer-led research pilot project. This webinar will explore each phase of the research process, from initiation to publication, with insights from experienced consumers and researchers.

The webinar will also include a panel discussion to explore practical applications, experiences and address participant questions, fostering a comprehensive grasp of consumer-led research methodologies and their implementation.

Chair

Dr Sheila Patel
Member, Consumer-Led Research Group; Senior Research Fellow, Austin Health

Sheila Patel is a passionate advocate for childhood cancer. Her commitment to consumer advocacy began when her child was diagnosed with high-risk neuroblastoma at the age of 3. She actively volunteers with multiple cancer consumer groups. She currently serves as the Co-Chair of the Children’s Cancer Centre Carers Network at the Royal Children’s Hospital and is a member of the VCCC Alliance Cancer Consumer Advisory Committee. Professionally, Sheila is a Senior Research Fellow and an experienced Molecular Geneticist. Drawing from her personal and professional experiences, Sheila strongly advocates for the improvement of cancer care and long-term outcomes for childhood cancer survivors.

 

Panelists

David Attwood
Member, Consumer-Led Research Group

Victor Namutwe
Member, Consumer-Led Research Group

Nora Moubarak
Member, Consumer-Led Research Group; Peter Mac Youth Cancer Action Advocate

 

Keith Donohoe

Keith-Donohoe
Consumer Advocate

Keith is an active consumer advocate of improving the health consumer experience and outcomes. He achieves this, with a strategic focus, as a voice on governance, management, and working committees at the VCCC Alliance, Royal Melbourne Hospital and throughout the Parkville precinct. He brings a lived experience to this project as both a patient and a carer of radiotherapy cancer treatment.

Sufi Saleh

No profile - woman
Co-Chair, Consumer-Led Research Group; Peter Mac Youth Cancer Action Advocate

Sufi is a youth cancer survivor with a degree in Biomedical Science and current qualifications in mental health work, with aspirations towards studies in psychiatry. She is passionate about advocating for young people to improve their experiences within healthcare services. Sufi was co-chair on the Victorian and Tasmanian Youth Cancer Action Board, with the Victorian Youth and Young adolescent service at the Peter MacCallum Cancer Centre. 

Sufi has been part of many co-design projects where she has helped develop age-appropriate resources and programs, providing a solid understanding of the challenges that young cancer patients face. She is particularly interested in investigating the barriers that patients with diverse backgrounds face when navigating the health system. As someone with a mental health diagnosis, Sufi is also able to advocate for young people in this population. 

Jo Cockwill

No profile - woman
Co-Chair Consumer-Led Research Group, Deputy Chair VCCC Alliance Cancer Consumer Advisory Committee

Jo is an original member of the VCCC Alliance Cancer Consumer Advisory Committee (CCAC) and currently Deputy Chair. She was a member of the Peter McCallum Cancer Centre Consumer Advisory Committee for 7 years, the Walter and Eliza Hall Institute (WEHI) Consumer Advisory Panel for four years and a current member of the WEHI Consumer Research Program.

Jo’s working life includes many years as a senior teacher of mathematics and several years as a school counsellor. She worked as the Hunter Breast Cancer Education Officer for Breast Cancer Trials in Newcastle where she also trained as a Genetic Counsellor with Hunter Genetics.

Jo is passionate about supporting cancer research and equitable cancer care, following her own lived experience both as a carer and patient. She strongly believes that consumers can provide valuable input into decisions about cancer research, policies and practice and can play an important role in improving cancer health outcomes for all.

Kelsey Serena

No profile - woman
Research Coordinator, Footscray Hospital; WEHI Gibbs Laboratory, Personalised Oncology

Kelsey is a research coordinator working in the Gibbs Lab Personalised Oncology group at WEHI, coordinating research projects at Western Health, Footscray.

Course Details

Picture of people reading at symposium
Course type
Webinars
Duration
60 mins
Price
$0.00
Curriculum Area
Consumer Involvement, Equity, and Inclusion
Research (incl. Clinical Trials)
Speciality
Early to mid career researcher
Senior researcher / scientist
Consumer / patient / carer
Monday Lunch Live
Research
Consumer
Consumer Involvement

This course is brought to you by

Alliance members