Bringing the patient voice forward

Published Catarina de Freitas on

Monday Lunch Live

15 June 2026 (Video recording below) 

Early experience of a brain tumour patient reported outcomes registry

This webinar outlines the design and early implementation of a new brain tumour patient‑reported outcomes registry developed to bring the patient voice into routine care and service planning.

WEHI's Dr Lucy Gately shares insights from consumer testing, as well as early results. These initial findings highlight both the opportunities and practical considerations involved in embedding patient‑reported outcomes into real‑world neuro‑oncology practice.

Chair 

Professor Mark Rosenthal
Medical Oncologist, 
Director Parkville Cancer Clinical Trials Unit (PCCTU), Peter MacCallum Cancer Centre

Professor Mark Rosenthal trained as a medical oncologist in Melbourne and Sydney, Australia. He received a Doctorate of Philosophy for a thesis examining the molecular genetics of colon cancer conducted at the Ludwig Institute for Cancer Research (1992-1996). He completed post-graduate training at New York University Medical Centre, New York, USA (1996-98) was a Senior Staff Specialist in the Department of Medical Oncology, Royal Melbourne Hospital (1998-2016) and Professor Director of the Department from 2006-2016. He was Chair and Chief Medical Officer of Cancer Trials Australia (2006-2016), inaugural Chair of the Cooperative Trials Group for Neuro-Oncology (2007-2017) and was the Clinical Trials Lead for the Victorian Comprehensive Cancer Centre (2016-20)

Professor Rosenthal is currently a Senior Staff Specialist in the Department of Medical Oncology at the Peter MacCallum Cancer Centre, Medical and Trials Lead for Neuro-oncology and Director of the Parkville Cancer Clinical Trials Unit. He has published over 170 peer-reviewed manuscripts and has been awarded over $30 million in competitive research grants. His major interests include neuro-oncology and clinical trials.

Speaker

Dr Lucy Gately
Clinician researcher, Walter Eliza Hall Institute (WEHI); Head of Neuro-Oncology, Cancer Genetics and Clinical Innovation, Bayside Health

Dr Gately is a medical oncologist and early career researcher. In 2021, she was awarded a PhD from the University of Melbourne, where her research focused on the clinical and molecular biomarkers for long-term survival and survivorship aspects in patients with glioblastoma. Her PhD has led to novel findings in the clinical/translational evidentiary landscape as well as the qualitative research realm. These data have been published in peer-reviewed journals and presented at scientific meetings both nationally and internationally.

Following her PhD, she has led the development of several research-enabled infrastructure platforms to enable collaboration and research efficiency within the brain cancer community. This has resulted in several national and international presentations, and in 2022, she was awarded the COGNO Young Investigator Award.

Resource details

BEACON logo
Course type
Webinars
Duration
60 mins
Price
$0.00
Curriculum Area
Treatment (incl. Supportive Care)
Research (incl. Clinical Trials)
Speciality
Clinician
Consumer / patient / carer
Early to mid career researcher
Senior researcher / scientist
Clinical care
Monday Lunch Live
Research

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