Connecting Care: Rare Cancers and Regional Australia

Published Lucy Clarke on

National Regional Cancer Forum Series 

Connecting Care: Rare Cancers and Regional Australia  

This webinar was held on 22 October 2026. Please see the webinar recording below. 

Regional and rural Australians living with a rare or less common cancer face unique barriers to diagnosis, treatment and supportive care. Drawing on findings from Rare Cancers Australia's Lived Experience Survey, this forum explores disparities in access, highlights the role of consumer-led advocacy in driving change, and showcases practical solutions including telehealth supportive care, the Australian Rare Cancer (ARC) Portal, and partnerships with local health professionals and communities.

Topics covered include:

  • Presentation of Rare Cancers Australia Lived Experience survey results
  • Rare Cancers Australia, Specialist Cancer Navigator as an example of consumer-led change
  • Access to the ARC portal, RCA Knowledgebase and Medicines Access Portal
  • Telehealth supportive care models
  • Delays to diagnosis and referral to supportive care
  • Working with community

ACRRM accreditation logo

Chair 

Dr Chloe Georgiou MBBS BMedSc MCncrSc FRACP   

Medical Oncologist, Bendigo Health 

Senior Research Fellow, ARC Portal   

Dr Georgiou is based in regional Victoria with a sub-specialty interest in rare, gastrointestinal and genitourinary cancers. She completed her medical degree through the University of Melbourne in 2013, including an advanced medical science year at Peter MacCallum Cancer Centre in 2011. Her FRACP in medical oncology was awarded in 2022, and she completed a Master of Cancer Sciences in 2023. She was the inaugural clinical trials fellow at Bendigo Health, and now acts as a principal investigator at the site in addition to clinical oncology work. She is a co-chair (access and awareness) of the Victorian Rare Cancer Clinical Trials Alliance.

Growing up and now living and working in regional Victoria, Chloe has a particular interest in health services design which facilitates equitable access to care. As a previous research fellow at the ARC Portal 2021-2023, she is honoured to return to a team dedicated to improved sharing of knowledge to facilitate care close to home.

 

Speakers

Jaime Macedo  

Cancer Navigation Program Lead, Rare Cancers Australia 

Jaime Macedo holds a Bachelor of Psychology and a Diploma of Counselling and brings over a decade of experience supporting people through complex health and life challenges. Jaime spent 10 years working in the aged care sector, including two years in management, developing a strong understanding of person-centred care and service delivery. For the past five years, he has been with RCA, where he leads and oversees the training and development of RCA’s specialist cancer navigators. Jaime is passionate about empowering the team to provide compassionate, informed and effective support to people impacted by rare and less common cancers.

Jane Weber

Senior Policy Manager, Rare Cancers Australia 

Jane Weber works to influence policy, drive system change and improve access to cancer care at Rare Cancers Australia. Jane brings more than 15 years’ experience across government, health research and the not-for-profit sector, with expertise in health policy and the delivery of evidence-informed programs. She is passionate about embedding lived experience and evidence in policy and practice to help make cancer care more accessible, equitable and responsive to the needs of people affected by cancer.

Arlie Novy

Outreach and Education Manager, Rare Cancers Australia 

Arlie has over 15 years of experience across oncology, paediatrics, emergency and neonatal care. She joined RCA in 2024 and continues to work casually in the Neonatal Unit at Wollongong Hospital. At RCA, Arlie combines her clinical expertise with education, advocacy and outreach. She supports the Patient Support Team, provides clinical guidance and leads engagement with health professionals across Australia to raise awareness of rare and less common cancers and strengthen referrals to RCA’s nationwide telehealth support service.

Tabitha Triplett 

Lived Experience Advocate 

Tabitha is a mother of three from regional Australia who was diagnosed with Stage 3C1 cervical cancer at the age of 35. Her experience has involved navigating diagnosis, treatment and ongoing care while balancing work and family life, as well as significant financial and access challenges. Tabitha is passionate about sharing her experience to help improve understanding of the realities of accessing cancer care in regional communities and to ensure the voices of people affected by cancer are heard in shaping more accessible, equitable and compassionate care.

Resource details

regional landscape
Course type
Webinars
Duration
1 hr 30 mins
Price
$0.00
Curriculum Area
Treatment (incl. Supportive Care)
Clinical Care
Consumer Involvement, Equity, and Inclusion
Speciality
Administration/Executive
Allied Health professional
Clinician
Consumer / patient / carer
Education & Training
GP
Nurse
Course Start Date
Clinical care
Consumer Involvement
Equity and inclusion
Rare cancers
Regional
Telehealth

This course is brought to you by

Alliance members